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The Isolation of families with Mental Illness
Posted On 07/28/2009 08:30:28 by MarianneSRusso

I can't think of anything more painful or more heart wrenching than that of the day to day life of a parent of a child with a serious mental illness. This is not to diminish the pain of parents of children with medical illnesses or of parents who have lost a child, but it is different. The isolation is palpable. The acceptance and sympathy is not universal. There is still, in this day and age, shame and the perception of failure. Yes, there are wonderful support groups and caring and knowledgeable doctors, but at the end of the day parents of children with mental illness are alone. Marriages are tested, siblings are adversely affected and families are held hostage by the disorders. Life becomes a constant calendar of doctor, psychiatrist and therapy appointments. Many families find themselves in financial ruin.


It seems there is always one step forward and two steps back. There is the medication roller coaster which once on, seems impossible to get off. There is the guilt and sleepless nights worrying if the decision to medicate is the right one and what the side effects may be, not only now, but in the future.

Here is an article posted today in the Los Angeles Times


Mentioned in this article is the lack of services available for these children and their parents. Respite care is not offered, long term hospitalization is not offered and many specializing psychiatrists do not take insurance. It truly is a sad state of affairs when our healthcare system cannot accommodate these children and their families.

Having a child with a mental illness is a challenging and difficult experience. It takes a strong and special parent to deal with the daily uncertainty.

Being the parent of a child with a mental illness can also be the most rewarding and life altering. Little successes become major triumphs. Priorities become clear. Parents develop a bond that most spouses will never know. There is true understanding of unconditional love. And when the war is won, there is no better victory.

The road for these families is long but the reward at the end is great.

Tags: Autism Schizophrenia Depression Bipolar



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Viewing 1 - 1 out of 1 Comments

From: Dawn
08/07/2009 19:42:12

Thank you for a heartfelt letter.  My son was diagnosed at age 14 after not sleeping


for 3 days, he became delusional.  I had worked as an RN in a mental health ward


with adolescents when I became pregnant with him.  I was a new graduate nurse


at the time.  Nothing prepared me for watching his mental melt down, and the trials


with the health care system that followed.  Even the fact that the unit I initally got


him into had fellow nurses I had acqaintance with previously.  After 4 yrs. of hospitalizations I was finally told about medicare options.  This was after paying


for hospitalizations once or twice a year.  He sees his Psychiatrist and psycologist


monthly, but the struggle never ends for him.  We were so happy for him recently


getting a car, making some friends in town, working on his GED.  He will be 20 in


November.  My husband isn't very supportive or understanding.  He feels I make


excuses.  He hasn't bothered to educate himself on the diagnosis, and when offered


to examine websites, doesn't look.  My husbands brother committed suicide after


graduating from Harvard with a BA in psychology.   My husband himself spent a


year as an adolescent on a psychiatric ward.  His father was diagnosed with Bi-polar,


and had only 2 hospitalizations.  I don't know if he is just so angry, or in denial,


but it is tearing us apart.   My husband is very egocentric, and isolates himself,


coping by playing his music or hanging with his friends.  Thanks for listening


anyway.




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